Ensuring Family Support in Disability Services through a Case Study of Caregivers for Individuals with Mental Disabilities
Abstract
Over the past few years, China has seen a growing prevalence of mental disabilities, with the number of affected individuals increasing each year. These individuals often require extended periods of rehabilitation, which places considerable caregiving responsibilities on their families. Rooted in traditional Chinese culture, families typically assume the role of primary caregivers, driven by a sense of duty and the societal stigma surrounding disabilities. This stigma fosters a cultural norm of keeping family issues private, leading families to operate within a socially insulated space shaped by persons with disabilities and service providers. The prolonged caregiving responsibilities also highlight the need for support systems that extend to caregivers. However, existing support structures in China largely focus on individuals with mental disabilities, overlooking the rights and protections needed by their caregivers. This study employs social ecological system theory to explore the challenges faced by family caregivers. Additionally, it draws on Esping-Andersen's welfare regime framework to analyze the welfare protections available to caregivers of persons with mental disabilities in the UK, considering four key dimensions: rights support, economic assistance, time-related support, and service provision. The goal is to offer insights and recommendations for enhancing China’s welfare protection system for caregivers.
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